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...bridging the gap

LAST UPDATE: Saturday, 20 June, 1998 09:28 GMT     F E A T U R E   S T O R Y        ...all the news, as it happens

Electronic Networks help people share experiences and join forces to fight AIDS
EMAIL NETWORK OFFERS HELP TO SOUTH

17 June, 1998

GENEVA, SWITZERLAND --  While the modern world has given people the means to meet, the AIDS pandemic deepens alienation especially in the developing world.

With AIDS in its second decade, valuable experience and knowledge about how we should counter it is available. Active sharing of these lessons helps to ensure appropriate responses and programmes. The major challenge is to help people share their experiences most effectively, to mobilize and rethink the meaning of solidarity.

Electronic networks present one of the few effective options for Bridging the Gap – helping people to help one another. Thanks to the timely advent of the Internet our collective response could outsmart HIV and the reach of the pandemic.

The Concerto forums, an integral part of the 12th World AIDS Conference in Geneva, are a synthesis of past experiences. They allow people attending the Conference to communicate in an additional way, and those not attending to nevertheless contribute to it. The momentum generated by one conference continues and spreads onto the next, bridging another gap.

Since 1996 a pioneering forum called SEA-AIDS has served Asia in this way, joining over 1200 organizations and individuals. Over 75% of participants say it helps them to find other people working on the same topic as them – people they did not know before joining the forum. Over 90% of participants report that they pass on information from the forum to others – including those without computer access.

In Europe, similar efforts were made by Hivnet.ch in Switzerland, where it is firmly established with over 1000 visitors to its web site daily. It is already a model for other countries.

The Concerto forums are part of the Geneva Conference Community Liaison Network, which also includes a newsletter and key correspondents around the globe. They cover Sex Work, Networking among People Living with HIV, Access to Treatment and Care, Community-based Research, Immigration and Human Rights.

Forum topics were suggested by non-government organizations and networks working with the organizers on the Community Rendez-Vous - a global meeting of community workers that precedes the Conference. An additional forum serves journalists and media organizations.

Concerto is expanding rapidly with over 2000 people joining in the six weeks since it was launched in early May. Services are provided free of charge to users. It is anticipated that Concerto will branch out organically into a number of forums serving regions such as Africa, Asia-Pacific, Latin America…

The real value of electronic forums is not just the large volume of practical information exchanged around events such as conferences, but that people are actually brought together continuously from very different corners of the world, discussing experiences, sharing concerns and needs - aware they are living in one world that is being threatened.

 




Selected Excerpts from the Concerto forums this week:
"The discussion on treatment access has focused so far on relatively affluent societies where ironically "in the land of plenty" patients do not pay for their drugs. There has been little discussion on access in African countries… The few who can afford have to pay a fortune, get a loan or sell properties for a few months supply because very often the money runs out. Do we die silently and bitter knowing that drug access is a philosophical discussion as far as we are concerned. Is this justice? Who ever will be discussing drug access in whatever gathering or conference please remember us". (Zimbabwe)

- "Ask yourself why you need to compile "interesting and compelling results" about sex workers individual spiritual and emotional lives? What are you trying to prove? -- and who are you exploiting in the process?" (Canada)

- "It is most likely that the best interest of PWAs in developing countries will be trampled upon by the tango between AIDS Activists in developed countries and pharmaceutical companies" (India)

- "What is the issue? A big issue in many developing countries is not necessarily lack of access to retrovirals/protease inhibitors, but that most people are dying in a tremendous amount of pain and suffering from preventable opportunistic infections " (USA)

--Participant, Concerto Forum


Getting in Touch
Visit the Concerto web site at: http://www.hivnet.ch/aids98
Email to: aids98.community@hivnet.ch

Concerto, Hivnet.ch and SEA-AIDS are managed by the Fondation du Présent - a non-profit organization
Fondation du Présent
Villa Moynier, 120B Rue de Lausanne, 1202 Geneva, Switzerland
Tel: (4122) 901 0151 Fax: (4122) 901 0152
Mobile: (4179) 433 4730 or (4179) 242 0479

The Community Liaison Network and Community Rendez-Vous are organized by the 12th World AIDS Conference Secretariat
94, rue des Eaux-Vives, CH-1207, Geneva, Switzerland
Phone:(41 22) 737 3344, Fax:(41 22) 700 3311
E-mail: info@aids98.ch
AIDS98 web site: http://www.aids98.ch


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