Electronic
    Networks help people share experiences and join forces to fight AIDS 
    EMAIL NETWORK OFFERS HELP TO SOUTH
    17 June, 1998 
    GENEVA, SWITZERLAND --  While the modern
    world has given people the means to meet, the AIDS pandemic deepens alienation especially
    in the developing world.  
    With AIDS in its second decade, valuable
    experience and knowledge about how we should counter it is available. Active sharing of
    these lessons helps to ensure appropriate responses and programmes. The major challenge is
    to help people share their experiences most effectively, to mobilize and rethink the
    meaning of solidarity. 
    Electronic networks present one
    of the few effective options for Bridging the Gap  helping people to
    help one another. Thanks to the timely advent of the Internet our collective response
    could outsmart HIV and the reach of the pandemic. 
    The Concerto forums, an integral
    part of the 12th World AIDS Conference in Geneva, are a synthesis of past experiences.
    They allow people attending the Conference to communicate in an additional way, and those
    not attending to nevertheless contribute to it. The momentum generated by one conference
    continues and spreads onto the next, bridging another gap. 
    Since 1996 a pioneering forum
    called SEA-AIDS has served Asia in this way, joining over 1200 organizations and
    individuals. Over 75% of participants say it helps them to find other people working on
    the same topic as them  people they did not know before joining the forum. Over 90%
    of participants report that they pass on information from the forum to others 
    including those without computer access. 
    In Europe, similar efforts were
    made by Hivnet.ch in Switzerland, where it is firmly established with over 1000 visitors
    to its web site daily. It is already a model for other countries.  
    The Concerto forums are part of
    the Geneva Conference Community Liaison Network, which also includes a newsletter and key
    correspondents around the globe. They cover Sex Work, Networking among People Living with
    HIV, Access to Treatment and Care, Community-based Research, Immigration and Human Rights. 
    Forum topics were suggested by
    non-government organizations and networks working with the organizers on the Community
    Rendez-Vous - a global meeting of community workers that precedes the Conference. An
    additional forum serves journalists and media organizations. 
    Concerto is expanding rapidly
    with over 2000 people joining in the six weeks since it was launched in early May.
    Services are provided free of charge to users. It is anticipated that Concerto will branch
    out organically into a number of forums serving regions such as Africa, Asia-Pacific,
    Latin America
  
    The real value of electronic forums is not just
    the large volume of practical information exchanged around events such as conferences, but
    that people are actually brought together continuously from very different corners of the
    world, discussing experiences, sharing concerns and needs - aware they are living in one
    world that is being threatened.  | 
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        Selected Excerpts
        from the Concerto forums this week: 
        "The discussion on treatment access has
        focused so far on relatively affluent societies where ironically "in the land of
        plenty" patients do not pay for their drugs. There has been little discussion on
        access in African countries
 The few who can afford have to pay a fortune, get a loan
        or sell properties for a few months supply because very often the money runs out. Do we
        die silently and bitter knowing that drug access is a philosophical discussion as far as
        we are concerned. Is this justice? Who ever will be discussing drug access in whatever
        gathering or conference please remember us". (Zimbabwe) 
        - "Ask yourself why
        you need to compile "interesting and compelling results" about sex workers
        individual spiritual and emotional lives? What are you trying to prove? -- and who are you
        exploiting in the process?" (Canada) 
        - "It is most
        likely that the best interest of PWAs in developing countries will be trampled upon by the
        tango between AIDS Activists in developed countries and pharmaceutical companies"
        (India) 
        - "What is the issue? A big issue
        in many developing countries is not necessarily lack of access to retrovirals/protease
        inhibitors, but that most people are dying in a tremendous amount of pain and suffering
        from preventable opportunistic infections " (USA)  | 
       
      
        --Participant,
        Concerto Forum  | 
       
      
         
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        Getting in Touch 
        Visit the Concerto web site at: http://www.hivnet.ch/aids98 
        Email to: aids98.community@hivnet.chConcerto, Hivnet.ch and SEA-AIDS
        are managed by the Fondation du Présent - a non-profit organization 
        Fondation du Présent 
        Villa Moynier, 120B Rue de Lausanne, 1202 Geneva, Switzerland 
        Tel: (4122) 901 0151 Fax: (4122) 901 0152 
        Mobile: (4179) 433 4730 or (4179) 242 0479 
        The Community Liaison Network and Community
        Rendez-Vous are organized by the 12th World AIDS Conference Secretariat 
        94, rue des Eaux-Vives, CH-1207, Geneva, Switzerland  
        Phone:(41 22) 737 3344, Fax:(41 22) 700 3311  
        E-mail: info@aids98.ch 
        AIDS98 web site: http://www.aids98.ch  | 
       
     
     
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